Domestic care work with disabled children: issues of replacement on the institutional level

Abstract

The article is based on the data of empirical research into the needs of children with disabilities conducted by the author in collaboration with the team of specialists of the Central Scientific Research Institute of Expertise of Work Capability and Organization of Labor of the Disabled in Moscow, during 2000-2001. In addition, the in-depth interviews were conducted with mother of children with disabilities. These interviews contained evidences about the issues of care for children with disabilities, about interactions of families with social infrastructure. Based on those data, the evaluation of the needs of children with disabilities is presented, the time costs of family members are calculated in regard to the care work with children of different age and rehabilitation potential. The author analyses different factors, which effect duration of the care work. Gendered approach is employed to evaluate the services that replace domestic care work with disabled children in social services for families and children.